tag:blogger.com,1999:blog-4934248353242144972.post182965466353348715..comments2021-05-31T16:31:23.139-07:00Comments on Once Upon A Butterfly...: thank YOU!Braycehttp://www.blogger.com/profile/16135928137664402882noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4934248353242144972.post-64437388737168115772012-10-21T20:44:27.359-07:002012-10-21T20:44:27.359-07:00Continued hope and prayers for your family and esp...Continued hope and prayers for your family and especially your little girl!Anonymoushttps://www.blogger.com/profile/17511388608876560070noreply@blogger.comtag:blogger.com,1999:blog-4934248353242144972.post-38763892417782078432012-10-20T20:19:30.607-07:002012-10-20T20:19:30.607-07:00Yes. She has Recessive Dystrophic EB. We aren'...Yes. She has Recessive Dystrophic EB. We aren't sure how severe hers is just yet, but she does have the scarring, missing finger nails and toe nails as well as deformed/thickening of the finger nails.Braycehttps://www.blogger.com/profile/16135928137664402882noreply@blogger.comtag:blogger.com,1999:blog-4934248353242144972.post-32245825232612469742012-10-20T19:38:06.285-07:002012-10-20T19:38:06.285-07:00Hi. Came across your story through another EB bab...Hi. Came across your story through another EB baby (Easton). Just wanted to let you know that you have an adorable little girl and the strength you (and other EB parents) have TRULY AMAZES me! That pic up above of her "mad" face cracks me up, btw. I do have one question, if you don't mind me asking...do you know what type of EB she has? Anonymoushttps://www.blogger.com/profile/17511388608876560070noreply@blogger.com