Brystal was sooo good. She had a blast. As did I!! All of our close family and friends were there! I wanted to say Thank You to my bestest friend. You know who you are ;) She is definitely my rock and surprised me by comig to her party. She started her new job and didn't think she would be able to show up! Anyways! Brystal got a ton of giraffes for her birthday lol. I'll Have to take a picture of all her giraffes and what not. She is too funny. And she got a lot of toys and CLOTHES! Yay! She was in such a great mood! I was beyond thrilled with how well she was. She didn't have the greatest nap but she did awesome. She even ate her birthday cake! She demolished it! Omg I have a million pictures of her eating her cake. It was the cutest thing. Of course we went with a butterfly and faire theme. It was so perfect. I doubt Brystal noticed it lol. But everyone else did so ya ha.
Okay so I wanted to post more about her birthday but I feel like there are a lot more things going on at the moment that I can't "remember" all the details. Brystal is very fussy and cranky. She has 5 teeth (3molars) coming all at once. She was constipated for a week, but now has diarrhea. She had OT today and we tried out two differet cups for her use. She isn't a fan of either. One of them cut her lip so I doubt I'll be able to get her to drink out of it and the other one doesn't have a valve to adjust her drinking intake and it really worries me. I don't want her to choke on it. She also has a swallow study next week as well as a PT apt and another OT apt. She is going to be one busy girl. It is a good thing I got all my Christmas shopping done and out of the way :)
We are having a lot of trouble with getting Brystal supplies. We just don't have the money to pay for them since Brendan is the only one working and we don't qualify for SSI till January. It is so stressful. We have been calling supply companies to see if they take our insurance but NONE of them take both our insurances, and the ones that take her secondary which is Medicade won't just run it because it is a secondary and NO ONE does that. It is so crazy and beyond stressful. I just don't know what to do at this point. We are waiting for a call back from her nurse this afternoon. I spoke with one supply company she told me it was $35 a day for one of the supplies we are using on Brystal. And we are responsible for paying 20%. She told me our cost would be around $500 a month! We can't afford half that! It is crazy. I hope we find a company soon.
Last weekend there was a walk in Sahuarita, AZ and they raised money for the dance studio and a few families brought toys for the girls for Christmas. A few even brought some clothes. It was so nice of them! We are in works to do a walk just for Brystal. I am hoping we can do it in March or maybe even April before the weather gets too warm. I will keep everyone updated on that though!
I am hoping that I can update better now. I know I probably say this a lot but I am going to try hard. I feel like a lot is going on and I get lost in it all. The girls ad I are doing projects all week until Christmas. We are starting our own traditions this year and I couldn't more excited. I hope that everyone had a fantastic Thanksgiving and that they continue to have a great time the rest of this year :)
Birthday Outfit <3
Present time. She wouldn't put down her giraffe.
Passed playing after everyone left her bday party :)
Birthday card from her Derm team <3
Helping me wrap Christmas presents for sissy's.
Helping me bake cookies for Thanksgiving.
Birthday Present from a family friend arrived in the mail!
Sisters at the park!
Lol LOVE this picture. She looked at me with this smirk after trying for 10 mins to get a picture of her lol
Random snow pile at the park. The girls were beyond excited lol
Swinging with sissy's at the park!
Two of her teeth. Bad picture but only one I could get lol